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Journal Article

Citation

January AM, Kelly EH, Russell HF, Zebracki K, Vogel LC. Fam. Syst. Health 2019; 37(2): 150-161.

Affiliation

Department of Pediatrics, Shriners Hospitals for Children.

Copyright

(Copyright © 2019, Families, Systems and Health)

DOI

10.1037/fsh0000415

PMID

31180708

Abstract

INTRODUCTION: Few studies have investigated how caregivers manage stressors associated with their child's spinal cord injury (SCI) and how these patterns relate to their child's coping and adjustment. The current study explored empirically derived coping profiles among caregivers of youth with SCI and the relation of these patterns to parent and youth psychosocial outcomes.

METHOD: This was a cross-sectional survey of 318 children (ages 1 to 18) and a primary caregiver. Participants completed measures assessing demographics, coping, quality of life (QOL), anxiety, and depression. We utilized hierarchical and nonhierarchical cluster analyses to identify unique coping patterns and one-way analysis of variance with control variables to assess relations between parental coping and psychosocial well-being.

RESULTS: The analyses produced 3 parent coping clusters, which included avoidant (n = 47), constructive (n = 119), and adjusted/low (n = 152). ANCOVAs revealed that parents in the avoidant cluster, who utilized disengagement and blaming strategies, had significantly worse mental health symptoms compared to the constructive and adjusted low coping clusters. Specifically, avoidant coping was significantly related to increased symptoms of caregiver depression (p <.001) and anxiety (p <.001) as well as children's self-report of anxiety (p =.002), depression (p <.005) and emotional QOL (p <.001).

DISCUSSION: These findings highlight the importance of fostering constructive and positive coping for both the children who face chronic illness and their caregivers. (PsycINFO Database Record (c) 2019 APA, all rights reserved).


Language: en

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