Citation

Taylor PJ, Awenat Y, Gooding P, Johnson J, Pratt D, Wood A, Tarrier N. J. Nerv. Ment. Dis. 2010; 198(5): 343-348.

Copyright

(Copyright © 2010, Lippincott Williams and Wilkins)

DOI

10.1097/NMD.0b013e3181da8545

PMID

20458196

Abstract

Mental health research may pose a risk to those who participate in it, especially for potentially vulnerable groups such as those diagnosed with schizophrenia. The current study aimed to investigate the subjective experience of research participation in this group. Seventy-nine individuals with diagnoses of schizophrenia spectrum disorders who had taken part in research looking at suicide were asked to provide feedback about their experiences. Responses were analyzed using qualitative and quantitative methods.

RESULTS indicate that negative feedback concerning participation was rare, occurring in 2.5% to 15.2% of responses. Positive feedback was more frequent, occurring in 45.6% to 60.8% of responses. Qualitative thematic analysis identified 5 key themes in participants' responses: Altruism, Value of being involved in research, Therapeutic effect, Enjoyable experience and Negative experiences. The results support the view that mental health research in this group can be ethically viable.

Language: en

Keywords

Humans; Adult; Female; Male; Qualitative Research; Motivation; Feedback; Suicide; Surveys and Questionnaires; Schizophrenia; Altruism; Suicide Prevention; Informed Consent; Attitude to Health; Attitude; Schizophrenic Psychology; Psychotic Disorders; Research Subjects; Ethics, Research; Patient Participation; Patient Satisfaction; Researcher-Subject Relations