Citation

Isham L, Bradbury-Jones C, Hewison A. Sociol. Health Illn. 2019; ePub(ePub): ePub.

Affiliation

School of Nursing, University of Birmingham, Birmingham, UK.

Copyright

(Copyright © 2019, Foundation for the Sociology of Health and Illness, Publisher John Wiley and Sons)

DOI

10.1111/1467-9566.12986

PMID

31515820

Abstract

Family carers affected by violent, abusive or harmful behaviour by the older person for whom they care face social and epistemic challenges in developing and sharing knowledge about their experiences. These difficulties have contributed to a situation in which there is a paucity of evidence and public discourse about how we understand violence and harm instigated by people who have care needs or are 'vulnerable'. This paper reports the findings of a qualitative study that involved 12 in-depth interviews with female carers affected by violence, abuse or harm. The study was informed theoretically by Miranda Fricker's concept of epistemic injustice which was used as a framework for analysis. There were two principal findings: (1) Carers were sensitive to anticipatory stigma and loss of moral autonomy. As a result, they self-censured what they shared and, at times, were met with subtle but powerful processes of silencing. (2) Carers had limited linguistic and conceptual resources to explain the emotional and social aspects of the harm they experienced, exacerbated by implicit social norms about the 'private' and gendered nature of familial care. To conclude, we discuss the implications of these findings for sociological research and health and social care practice.

© 2019 Foundation for the Sociology of Health & Illness.

Language: en

Keywords

abuse; caring; epistemic injustice; families; older age; violence