Citation

Dunford C, Cobbold C, Ray I, Wales L. Dev. Neurorehabil. 2019; ePub(ePub): 1-8.

Affiliation

The Children's Trust , Tadworth , Surrey , UK.

Copyright

(Copyright © 2019, Informa - Taylor and Francis Group)

DOI

10.1080/17518423.2018.1564394

PMID

30724652

Abstract

STATEMENT OF PURPOSE: This study explored the information requirements of children/youth with an acquired brain injury.

METHODS: An online survey (n = 16), focus group (n = 5) and in-depth semi-structured interviews (n = 3) elicited the views of 24 children/youth with ABI. A priori thematic coding was used to analyze the data.

RESULTS: Five themes emerged: stage and age, school, friendship and peers, delivery methods and information content. The desired information changes over time depending on age and time since the injury. Children/youth want their friends and teachers to access information on brain injury. Children/youth want information delivered through a range of channels, including videos (featuring genuine case studies), apps and board games. Children/youth wanted information specific to their injury, information on brain injury more generally, and practical strategies for overcoming problems.

CONCLUSIONS: Children/youth with ABI were able to express views about their information needs, which change over time and include a range of channels.

Language: en

Keywords

Information; acquired brain injury; children; youth