OBJECTIVE: To identify important sources of distress among burn survivors at discharge and at 6, 12 and 24 months post injury, and to examine if the distress related to these sources changed over time.
DESIGN: Exploratory. SETTING: Outpatient burn clinics in 4 sites across the country. PARTICIPANTS: A total of 1009 participants who met pre-stablished criteria for having a major burn injury were enrolled in this multisite study. INTERVENTIONS: Participants were given a previously developed list of 12 sources of distress among burn survivors, and asked to rate on a 10-point, Likert-type scale (0 = no distress to 10 = high distress) how much distress each of the 12 issues was causing them at the time of each follow-up. MAIN OUTCOMES: The SF-12® Health Survey was administered at each time point as a measure of health-related quality of life. The Satisfaction With Appearance Scale (SWAP) was used to understand the relationship between sources of distress and body image. Finally, whether a person returned to work was used to determine the impact of sources of distress on returning to employment.
RESULTS: It was encouraging that no symptoms were worsening at 2 years. However, financial concerns and long recovery time are two of the highest means at all time points. Pain and sleep disturbance had the biggest impact on ability to return to work.
CONCLUSIONS:. These findings can be used to inform burn-specific interventions and to give survivors an understanding of the temporal trajectory for various causes of distress. In particular, it appears that interventions targeted at sleep disturbance and high pain levels can potentially impact distress over financial concerns by allowing a person to return to work more quickly.