Citation

Ozyemisci-Taskiran O, Coskun O, Budakoglu II, Demirsoy N. J. Spinal Cord Med. 2018; 41(3): 347-354.

Affiliation

Department of Physical Medicine and Rehabilitation , Gazi University School of Medicine , Ankara , Turkey.

Copyright

(Copyright © 2018, Academy of Spinal Cord Injury Professionals, Publisher Maney Publishing)

DOI

10.1080/10790268.2017.1311463

PMID

28387153

Abstract

Prior abstract publication: 2(nd) Medical Rehabilitation Congress; Nov 4-7, 2010; Ankara, Turkey Objective: This study aims to investigate the process of breaking bad news from the perspective of spinal cord injury survivors.

DESIGN: A cross sectional, qualitative study Setting: Community Participants: Fourteen spinal cord injury survivors Interventions: Subjects participated in a semi-structured interview about 'when', 'where' 'by whom' and 'how' they received and 'would' prefer to receive bad news. OUTCOME MEASURES: Answers to 'how' questions were coded according to SPIKES protocol (Setting, Perception, Invitation, Knowledge, Empathizing, Summary).

RESULTS: Eight participants (57%) reported that they received bad news from a physician, mostly during rehabilitation. All would prefer to be informed by a physician and majority preferred to be gradually informed during rehabilitation. Half were not satisfied with the content of information. Only half felt that his/her physiatrist understood his/her emotional distress. Majority of participants who received bad news from physicians reported that the setting was private and their family members accompanied them.

CONCLUSION: Most spinal cord injury survivors were unsatisfied with knowledge and emotional support provided by rehabilitation physicians. Participants would prefer to receive bad news by a senior physiatrist in a planned meeting during rehabilitation.

Language: en

Keywords

Communication; Paraplegia; Physician-patient relations; Prognosis; Rehabilitation; Spinal cord injuries