|
Citation
|
Ilmer EC, Lambregts SA, Berger MA, de Kloet AJ, Hilberink SR, Roebroeck ME. Eur. J. Paediatr. Neurol. 2015; 20(1): 131-139. |
|
Affiliation
|
Erasmus MC University Medical Centre, Department of Rehabilitation Medicine, Rotterdam, The Netherlands; Rijndam Rehabilitation Institute, Rotterdam, The Netherlands. |
|
Abstract
|
OBJECTIVE: To determine health-related quality of life (HRQoL) in children and youth with acquired brain injury (ABI) two years post-injury and explore associated factors.
DESIGN: Cross-sectional. SUBJECTS: Children and youth (n = 72; aged 6-22 years) with mild to severe ABI (87% mild).
METHODS: The primary outcome measures self-reported and parent-reported HRQoL were assessed with the Paediatric Quality of Life Inventory (PedsQL) and compared with age-appropriate reference values of the Dutch population. Spearman correlation coefficients (Rs) were used to explore relationships between HRQoL and sociodemographic and ABI characteristics, severity of impairments and presence of post-injury problems.
RESULTS: Children and youth with ABI and the reference population had similar self-reported HRQoL. However, as reported by parents, children with ABI aged 6-7 years and youth aged 13-18 years had poorer HRQoL regarding psychosocial health. Children's post-injury cognitive, behavioural and social problems were moderately associated with poorer HRQoL, especially psychosocial health (Rs ≥ 0.40). Severity nor type of injury were associated with children's HRQoL.
CONCLUSION: Two years post-injury, in children and youth with mild to severe ABI, reported HRQoL is similar to that in the general population, whereas parents reported less favourable outcomes. Post-injury cognitive, behavioural and social problems require ongoing attention during long-term follow-up.
Language: en |