Citation

Masnari O, Schiestl C, Rössler J, Gütlein SK, Neuhaus K, Weibel L, Meuli M, Landolt MA. J. Pediatr. Psychol. 2013; 38(2): 162-172.

Affiliation

Department of Psychosomatics and Psychiatry, University Children's Hospital Zurich, Pediatric Burn Center, Plastic and Reconstructive Surgery, University Children's Hospital Zurich, Center for Pediatrics and Adolescent Medicine, University Medical Hospital Freiburg, and Department of Pediatric Dermatology, University Children's Hospital Zurich.

Copyright

(Copyright © 2013, Oxford University Press)

DOI

10.1093/jpepsy/jss106

PMID

23172874

Abstract

OBJECTIVES: This cross-sectional study assessed psychological adjustment and health-related quality of life (HRQOL) in children and adolescents with congenital or acquired facial differences and identified potential predictors of adjustment. METHODS: Data were obtained from 88 children, ages 9 months to 16 years, by means of parent questionnaires (n = 86) and standardized interviews with children ≥7 years old (n = 31). Evaluation measures included the Child Behavior Checklist (CBCL), KIDSCREEN-27, TNO-AZL Preschool Quality of Life Questionnaire (TAPQOL), and Perceived Stigmatization Questionnaire. RESULTS: Psychological adjustment, as measured by the CBCL, was within norms. Parent-reported HRQOL was good in preschool children. Parent- and self-reported HRQOL of participants 7-16 years old was impaired in several dimensions, including psychological well-being. Psychological adjustment (especially internalizing behavior problems) and HRQOL were predicted primarily by perceived stigmatization. CONCLUSIONS: Identification of stigma experiences and appropriate support may be crucial to enhancing psychological adjustment and quality of life in children with facial disfigurement.

Language: en