Citation

Green L, Godfrey C, Soo C, Anderson V, Catroppa C. Dev. Neurorehabil. 2012; 15(2): 105-113.

Affiliation

Child Neuropsychology, Murdoch Childrens Research Institute , Melbourne , Australia.

Copyright

(Copyright © 2012, Informa - Taylor and Francis Group)

DOI

10.3109/17518423.2011.638331

PMID

22432599

Abstract

Objective: This study investigated parent-adolescent agreement in long-term psychosocial and quality-of-life (QoL) outcomes. The sample comprised adolescents aged 15-18 years, who sustained childhood traumatic brain injury (TBI) between birth and 5 years of age. Methods: Thirty-three participants (17 adolescents with TBI and 16 TBI parent-proxies) were involved in the study which compared parent and adolescent ratings on the Sydney Psychosocial Reintegration Scale-Child form (SPRS-C) and the Pediatric Quality-of-Life Inventory (PedsQL). The questionnaires were administered through phone interviews. Results: As hypothesized, parent-adolescent agreement was acceptable for psychosocial outcome (intra-class coefficient [ICC] of 0.844, p < 0.001), whereas discrepancies were found for ratings of QoL (ICC of 0.506, p = 0.092). Conclusion: The finding that parents and adolescents agree on psychosocial outcome is promising for those instances when the patient is unable to report; however, discrepancies regarding QoL suggest caution needs to be taken when interpreting parent-rated QoL data.

Language: en