TY  - JOUR
PY  - 2024//
TI  - Final validation of the Quality of Life after Brain Injury for Children and Adolescents (QOLIBRI-KID/ADO) Questionnaire
JO  - Children (Basel, Switzerland)
A1  - von Steinbuechel, Nicole
A1  - Zeldovich, Marina
A1  - Timmermann, Dagmar
A1  - Krenz, Ugne
A1  - Koerte, Inga K.
A1  - Bonfert, Michaela V.
A1  - Berweck, Steffen
A1  - Kieslich, Matthias
A1  - Henrich, Marlene
A1  - Brockmann, Knut
A1  - Buchheim, Anna
A1  - Roediger, Maike
A1  - Lendt, Michael
A1  - Auer, Christian
A1  - Neu, Axel
A1  - Kaiser, Alexander
A1  - Driemeyer, Joenna
A1  - Greving, Sven
A1  - Wartemann, Ulrike
A1  - Pinggera, Daniel
A1  - Thomé, Claudius
A1  - Suss, Joachim
A1  - Muehlan, Holger
A1  - Cunitz, Katrin
SP  - e438
EP  - e438
VL  - 11
IS  - 4
N2  - Until recently, no disease-specific health-related quality of life (HRQoL) questionnaire existed for pediatric traumatic brain injuries (TBIs). In this revalidation study, the psychometric properties and the validity of the 35-item QOLIBRI-KID/ADO questionnaire in its final German version were examined in 300 children and adolescents. It is the first self-reported TBI-specific tool for measuring pediatric HRQoL in individuals aged between 8 and 17 years. The six-factor model fits the data adequately. The questionnaire's internal consistency was excellent for the total score and satisfactory to excellent for the scale scores. Intraclass correlations indicated good test-retest reliability, and the measure's construct validity was supported by the overlap between the QOLBRI-KID/ADO and the PedsQL, which measures generic HRQoL. The discriminant validity tests showed that older children and girls reported a significantly lower HRQoL than comparison groups, and this was also true of children who were anxious or depressed, or who suffered from post-concussion symptoms, replicating the results of the questionnaire's first developmental study. Our results suggest that the QOLIBRI-KID/ADO is a reliable and valid multidimensional tool that can be used together with the adult version in clinical contexts and research to measure disease-specific HRQoL after pediatric TBI throughout a person's life. This may help improve care, treatment, daily functioning, and HRQoL after TBI.<p />  <p>Language: en</p>
LA  - en
SN  - 2227-9067
UR  - http://dx.doi.org/10.3390/children11040438
ID  - ref1
ER  -