TY  - JOUR
PY  - 2023//
TI  - "If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention
JO  - Brain injury
A1  - Oyesanya, Tolu O.
A1  - Ibemere, Stephanie O.
A1  - Loflin, Callan
A1  - McReynolds, Victoria
A1  - Anaya, Brian
A1  - Huang, Michelle
A1  - Gonzalez-Guarda, Rosa
A1  - Strauman, Timothy J.
A1  - Prvu Bettger, Janet
SP  - ePub
EP  - ePub
VL  - ePub
IS  - ePub
N2  - OBJECTIVE: Despite research, national legislation, and clinical guidelines supporting transitional care, there is minimal benefit from existing transitional care interventions for racial/ethnic minorities with traumatic brain injury (TBI) discharged home from acute hospital care. Existing TBI transitional care interventions are not tailored to address the needs/preferences of patients from various racial/ethnic minority groups. The purpose of this study was to describe use of personalization to tailor a TBI transitional care intervention for various racial/ethnic groups. <br><br>DESIGN: Following preliminary intervention manual development, a qualitative descriptive study was conducted using eight focus groups with 40 English-and Spanish-speaking participants (12 patients, 12 caregivers, and 16 providers). <br><br>RESULTS: Three personalization-related themes emerged: 1) what is important to me, 2) finding someone to deliver the intervention who can adapt to my needs, and 3) respect over culture. <br><br>FINDINGS informed personalization strategies within our final manual. <br><br>CONCLUSIONS: We recommend researchers who wish to use personalization to tailor interventions to consider: 1) allowing stakeholders to dictate what is most important and 2) implementing an iterative intervention development process with input from diverse stakeholders. <br><br>FINDINGS have implications for informing the development of transitional care interventions to increase the likelihood that interventions are inclusive of needs and preferences of various races/ethnicities.<p />  <p>Language: en</p>
LA  - en
SN  - 0269-9052
UR  - http://dx.doi.org/10.1080/02699052.2023.2208881
ID  - ref1
ER  -