TY - JOUR
PY - 2022//
TI - Predictors of missed follow-up visits in the National Traumatic Brain Injury Model Systems Cohort Study
JO - Archives of physical medicine and rehabilitation
A1 - Vos, Leia C.
A1 - Ngan, Esther
A1 - Novelo, Luis Leon
A1 - Williams, Michael W.
A1 - Hammond, Flora M.
A1 - Walker, William C.
A1 - Clark, Allison N.
A1 - Lopez, Andrea P. Ochoa
A1 - Juengst, Shannon B.
A1 - Sherer, Mark
SP - ePub
EP - ePub
VL - ePub
IS - ePub
N2 - OBJECTIVE: To identify key variables that could predict risk of loss to follow-up (LTFU) in a nationally funded longitudinal database of persons with traumatic brain injury DESIGN: Secondary analysis of a prospective longitudinal cohort study SETTING: Traumatic Brain Injury Model System Centers (TBIMS) in the USA PARTICIPANTS: 17,956 TBIMS participants with interview status data available were included if eligible for 1, 2, 5, 10, 15 or 20-year follow-ups between 10/31/1989 and 09/30/2020 INTERVENTIONS: Not applicable MAIN OUTCOME MEASURE(S): Follow-up data collection completion status at years 1, 2, 5, 10, 15, and 20.
RESULTS: Information relevant to participant's history, injury characteristics, rehabilitation stay, and patterns of follow-up across 20 years were considered using a series of logistic regression models. Overall, LTFU rates were low (consistently <20%). The most robust predictors of LTFU across models were missed earlier follow-ups and demographic factors including Hispanic ethnicity, lower education, and lack of private health insurance.
CONCLUSIONS: Efforts to retain participants in such social disadvantaged or minority groups are encouraged given their disproportionate rate of LTFU. Repeated attempts to reach participants after a previously missed assessment are beneficial, as many participants that missed one or more follow-ups were later recovered.
Language: en
LA - en SN - 0003-9993 UR - http://dx.doi.org/10.1016/j.apmr.2022.05.003 ID - ref1 ER -