TY  - JOUR
PY  - 2020//
TI  - The functioning of social support in long-term prevention after spinal cord injury. a qualitative study
JO  - Annals of physical and rehabilitation medicine
A1  - Fort, Marc Le
A1  - Lefèvre, Chloé
A1  - Kieny, Pierre
A1  - Perrouin-Verbe, Brigitte
A1  - Ravaud, Jean-Francois
SP  - ePub
EP  - ePub
VL  - ePub
IS  - ePub
N2  - BACKGROUND: The impact of social support on the long-term condition after a spinal cord injury (SCI) varies across studies mainly involving self-report questionnaires.     OBJECTIVE: We aimed to establish the common factors associated with social support leading individuals with an SCI to the effective prevention of secondary complications, including via adherence to medical follow-up.     METHODS: Inclusion criteria were a history of acquired SCI of any etiology, wheelchair use, and age ≥ 18 years at the time of the study. Participants should have completed their initial rehabilitation program in France ≥ 1 year earlier and were also enrolled according to 2 related study variables: routine medical follow-up (patients were or were not followed up) and the medically supervised reporting of a pressure ulcer after the initial rehabilitation session (0 or ≥ 1 pressure ulcers). We performed a preparatory quantitative and qualitative literature review to identify factors affecting long-term follow-up after SCI, then adopted a narrative design with 32 semi-structured interviews, transcribed and analyzed progressively by using qualitative analysis software.     RESULTS: We included 42 participants. We categorized our results based on the knowledge, attitudes, beliefs and practices of participants with respect to pressure ulcer prevention and long-term medical follow-up. Our narrative approach allowed us to identify 3 main domains relevant to social support: reciprocity, self-management and timing related to social support.     CONCLUSIONS: Our study showed social support as a dynamic process, a reciprocal phenomenon evolving in variations over time. These findings should be central to short- and long-term therapeutic education programs for patients and for people providing social support. Effective changes should also be implemented through the concept of the Learning Health System.<p />  <p>Language: en</p>
LA  - en
SN  - 1877-0657
UR  - http://dx.doi.org/10.1016/j.rehab.2020.10.007
ID  - ref1
ER  -