TY  - JOUR
PY  - 2019//
TI  - National Spinal Cord Injury Registry of Iran (NSCIR-IR) - a critical appraisal of its strengths and weaknesses
JO  - Chinese journal of traumatology
A1  - Sharif-Alhoseini, Mahdi
A1  - Azadmanjir, Zahra
A1  - Sadeghi-Naini, Mohsen
A1  - Ghodsi, Zahra
A1  - Naghdi, Khatereh
A1  - Mohammadzadeh, Mahdi
A1  - Azarhomayoun, Amir
A1  - Zendehdel, Kazem
A1  - Khormali, Moein
A1  - Sadeghian, Farideh
A1  - Jazayeri, Seyed Behzad
A1  - Sehat, Mojtaba
A1  - Pirnejad, Habibollah
A1  - Benzel, Edward C.
A1  - O'Reilly, Gerard
A1  - Fehlings, Michael G.
A1  - Vaccaro, Alexander R.
A1  - Rahimi-Movaghar, Vafa
SP  - ePub
EP  - ePub
VL  - ePub
IS  - ePub
N2  - The National Spinal Cord Injury Registry of Iran (NSCIR-IR) is a not-for-profit, hospital-based, and prospective observational registry that appraises the quality of care, long-term outcomes and the personal and psychological burden of traumatic SCI in Iran. Benchmarking validity in every registry includes, rigorous attention to data quality. Data quality assurance is essential for any registry to make sure that correct patients are being enrolled and that the data being collected is valid. We reviewed strengths and weaknesses of the NSCIR-IR while considering the methodological guidelines and recommendations for efficient and rational governance of patient registries. In summary, the steering committee, funded and maintained by the MOHME, the international collaborations, continued staff training, suitable data quality, and the ethical approval are considered to be the strengths of the Registry, while limited human and financial resources, poor interoperability with other health systems, and time-consuming processes are among its main weaknesses.<br><br>Copyright © 2019 Chinese Medical Association. Production and hosting by Elsevier B.V. All rights reserved.<p />  <p>Language: en</p>
LA  - en
SN  - 1008-1275
UR  - http://dx.doi.org/10.1016/j.cjtee.2019.05.003
ID  - ref1
ER  -