TY  - JOUR
PY  - 2018//
TI  - Harmful or helpful? A systematic review of how those bereaved through suicide experience research participation
JO  - Crisis
A1  - Andriessen, Karl
A1  - Krysinska, Karolina
A1  - Draper, Brian
A1  - Dudley, Michael
A1  - Mitchell, Philip B.
SP  - 364
EP  - 376
VL  - 39
IS  - 5
N2  - BACKGROUND: Many of the bereaved through suicide are interested in participating in postvention studies. However, there is a contradiction between the positive experiences of research participation and concerns raised by ethical boards. AIMS: To review studies on the experience of research participation by those bereaved through suicide, including initial contact with the study and its short- and long-term impacts. <br><br>METHOD: Systematic searches in Embase, Medline, PsycINFO, as well as Google Scholar identified 12 papers reporting on 11 studies. <br><br>RESULTS: The majority (73-100%) of study participants evaluated participation positively, and would recommend it to others (90-100%), as it was related to altruism, social support, and personal growth. A minority experienced participation as negative (2-10%) or upsetting (5-22%) due to feelings of guilt or painful memories. However, having a painful experience does not preclude seeing it as helpful. LIMITATIONS: Most studies concerned face-to-face psychological autopsy studies, and only two studies included a control group. <br><br>CONCLUSION: Research applying standardized measures may enhance our understanding of the factors germane to (non-)participation and to the likelihood of a positive/negative research experience. Vigilant recruitment and providing optimum care for participants are indicated. Further research may continue to improve participant safety and the research design of suicide bereavement studies.<p />  <p>Language: en</p>
LA  - en
SN  - 0227-5910
UR  - http://dx.doi.org/10.1027/0227-5910/a000515
ID  - ref1
ER  -