%0 Journal Article
%T Quality of life in persons after traumatic brain injury as self-perceived and as perceived by the caregivers
%J Neurological sciences
%D 2016
%A Formisano, Rita
%A Longo, Eloise
%A Azicnuda, Eva
%A Silvestro, Daniela
%A D'Ippolito, Mariagrazia
%A Truelle, Jean-Luc
%A von Steinbuechel, Nicole
%A von Wild, Klaus Rüdiger Helmut
%A Wilson, Lindsay
%A Rigon, Jessica
%A Barba, Carmen
%A Forcina, Antonio
%A Giustini, Marco
%V 38
%N 2
%P 279-286
%X The primary aim of the study was to adopt QOLIBRI (quality of life after brain injury) questionnaire in a proxy version (Q-Pro), i.e., to use caregivers for comparison and to evaluate whether TBI patients' judgment corresponds to that of their caregivers since the possible self-awareness deficit of the persons with TBI. A preliminary sample of 19 outpatients with TBI and their proxies was first evaluated with the Patient Competency Rating Scale to assess patients' self-awareness; then they were evaluated with the QOLIBRI Patient version (Q-Pt) and a patient-centered version of the Q-Pro. Subsequently, 55 patients and their caregivers were evaluated using the patient-centered and the caregiver-centered Q-Pro versions. Q-Pt for assessing Quality of Life (QoL) after TBI, as patients' subjective perspective and Q-Pro to assess the QoL of patients as perceived by the caregivers. The majority of patients (62.2%) showed better self-perception of QoL than their proxies; however, patients with low self-awareness were less satisfied than patients with adequate self-awareness. Low self-awareness does not impair the ability of patients with TBI to report on satisfaction with QoL as self-perceived.<p /> <p>Language: en</p>
%G en
%I Holtzbrinck Springer Nature Publishing Group
%@ 1590-1874
%U http://dx.doi.org/10.1007/s10072-016-2755-y