@article{ref1,
title="Determining the burdens and difficulties faced by families with intellectually disabled children",
journal="Journal of psychiatric nursing (İstanbul)",
year="2019",
author="Balci, S. and Kızıl, H. and Savaşer, S. and Dur, Ş. and Mutlu, B.",
volume="10",
number="2",
pages="124-130",
abstract="OBJECTIVES: This descriptive research was conducted with the aim of determining the difficulties families with intellectually disabled children face and their family burdens. <br><br>METHODS: The research population consisted of the mothers of 220 children who are aged 0-18 and monitored at a Special Guidance and Research Center due to their intellectual disabilities. The sample group was composed of 160 mothers who consented to participate in the research. <br><br>RESULTS: Of the children, 36.9% had mild, 43.1% had moderate, and 20% had severe mental retardation. Of the mothers, 48.8% reported they had no one with whom to share the care of the child. Mothers also reported that they felt disappointment (38.8%), bewilderment (48.1%), shock (31.3%), desperation (52.5%), anger (16.9%), guilt (14.4%). Of the mothers, 13.1% blamed others, 61.9% accepted the situation as an act of God, 12.5% had thoughts of committing suicide, and 28.1% suffered from depression. On the &quot;Family Burden Assessment Scale (FBAS),&quot; 7.5% of the mothers got low scores, and 92.5% got high scores. <br><br>CONCLUSION: This research found that most of the families felt anxious about the future, felt like their burden was too much to bear, and expected information and support from healthcare professionals. © Copyright 2019 by Journal of Psychiatric Nursing-.<p /><p>Language: en</p>",
language="en",
issn="1309-3568",
doi="10.14744/phd.2018.05657",
url="http://dx.doi.org/10.14744/phd.2018.05657"
}