@article{ref1,
title=""If you respect me, you are respecting my culture": methods and recommendations for personalizing a TBI transitional care intervention",
journal="Brain injury",
year="2023",
author="Oyesanya, Tolu O. and Ibemere, Stephanie O. and Loflin, Callan and McReynolds, Victoria and Anaya, Brian and Huang, Michelle and Gonzalez-Guarda, Rosa and Strauman, Timothy J. and Prvu Bettger, Janet",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="OBJECTIVE: Despite research, national legislation, and clinical guidelines supporting transitional care, there is minimal benefit from existing transitional care interventions for racial/ethnic minorities with traumatic brain injury (TBI) discharged home from acute hospital care. Existing TBI transitional care interventions are not tailored to address the needs/preferences of patients from various racial/ethnic minority groups. The purpose of this study was to describe use of personalization to tailor a TBI transitional care intervention for various racial/ethnic groups. <br><br>DESIGN: Following preliminary intervention manual development, a qualitative descriptive study was conducted using eight focus groups with 40 English-and Spanish-speaking participants (12 patients, 12 caregivers, and 16 providers). <br><br>RESULTS: Three personalization-related themes emerged: 1) what is important to me, 2) finding someone to deliver the intervention who can adapt to my needs, and 3) respect over culture. <br><br>FINDINGS informed personalization strategies within our final manual. <br><br>CONCLUSIONS: We recommend researchers who wish to use personalization to tailor interventions to consider: 1) allowing stakeholders to dictate what is most important and 2) implementing an iterative intervention development process with input from diverse stakeholders. <br><br>FINDINGS have implications for informing the development of transitional care interventions to increase the likelihood that interventions are inclusive of needs and preferences of various races/ethnicities.<p /> <p>Language: en</p>",
language="en",
issn="0269-9052",
doi="10.1080/02699052.2023.2208881",
url="http://dx.doi.org/10.1080/02699052.2023.2208881"
}