@article{ref1,
title="Predictors of missed follow-up visits in the National Traumatic Brain Injury Model Systems Cohort Study",
journal="Archives of physical medicine and rehabilitation",
year="2022",
author="Vos, Leia C. and Ngan, Esther and Novelo, Luis Leon and Williams, Michael W. and Hammond, Flora M. and Walker, William C. and Clark, Allison N. and Lopez, Andrea P. Ochoa and Juengst, Shannon B. and Sherer, Mark",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="OBJECTIVE: To identify key variables that could predict risk of loss to follow-up (LTFU) in a nationally funded longitudinal database of persons with traumatic brain injury DESIGN: Secondary analysis of a prospective longitudinal cohort study SETTING: Traumatic Brain Injury Model System Centers (TBIMS) in the USA PARTICIPANTS: 17,956 TBIMS participants with interview status data available were included if eligible for 1, 2, 5, 10, 15 or 20-year follow-ups between 10/31/1989 and 09/30/2020 INTERVENTIONS: Not applicable MAIN OUTCOME MEASURE(S): Follow-up data collection completion status at years 1, 2, 5, 10, 15, and 20. <br><br>RESULTS: Information relevant to participant's history, injury characteristics, rehabilitation stay, and patterns of follow-up across 20 years were considered using a series of logistic regression models. Overall, LTFU rates were low (consistently <20%). The most robust predictors of LTFU across models were missed earlier follow-ups and demographic factors including Hispanic ethnicity, lower education, and lack of private health insurance. <br><br>CONCLUSIONS: Efforts to retain participants in such social disadvantaged or minority groups are encouraged given their disproportionate rate of LTFU. Repeated attempts to reach participants after a previously missed assessment are beneficial, as many participants that missed one or more follow-ups were later recovered.<p /> <p>Language: en</p>",
language="en",
issn="0003-9993",
doi="10.1016/j.apmr.2022.05.003",
url="http://dx.doi.org/10.1016/j.apmr.2022.05.003"
}