@article{ref1,
title="A minimum data set for traumatic brain injuries in Iran",
journal="Chinese journal of traumatology",
year="2021",
author="Edalatfar, Maryam and Sadeghi-Naini, Mohsen and Khayat Kashani, Hamid Reza and Movahed, Mitra and Sharif-Alhoseini, Mahdi",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="PURPOSE: Traumatic brain injury (TBI) is one of the major public health concerns worldwide. Developing a TBI registry could facilitate characterizing TBI, monitoring the quality of care, and quantifying the burden of TBI by collecting comparable and standardized epidemiological and clinical data. However, a national standard tool for data collection of the TBI registry has not been developed in Iran yet. This study aimed to develop a national minimum data set (MDS) for a hospital-based registry of patients suffering from TBI in Iran. <br><br>METHODS: The MDS was designed in two phases, including a literature review and a Delphi study with content validation by an expert panel. After the literature review, a comprehensive list of administrative and clinical items was obtained. Through a two-round e-Delphi approach conducted by invited experts with clinical and research experience in the field of TBI, the final data elements were selected. <br><br>RESULTS: An MDS of TBI was assigned to two parts: administrative part with 5 categories including 52 data elements, and clinical part with 9 categories including 130 data elements. <br><br>CONCLUSION: For the first time in Iran, we developed an MDS specified for TBI consisting of 182 data elements. The MDS would facilitate implementing a TBI's national level registry and providing essential, comparable, and standardized information.<p /> <p>Language: en</p>",
language="en",
issn="1008-1275",
doi="10.1016/j.cjtee.2021.09.007",
url="http://dx.doi.org/10.1016/j.cjtee.2021.09.007"
}