@article{ref1,
title="Caregivers' perspectives of the challenges faced with survivors of traumatic brain injury: a scoping review",
journal="NeuroRehabilitation",
year="2021",
author="Page, Teneille A. and Gordon, Sarah and Balchin, Ross and Tomlinson, Mark",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="INTRODUCTION: Traumatic Brain Injury (TBI) has wide-ranging neuropsychological, physical, social and financial implications. The impact on caregivers of moderate to severe TBI survivors, particularly in low- and middle-income countries, is under-investigated. <br><br>AIM: Identify and describe the experiences of caregivers' of moderate to severe TBI survivors postdischarge from healthcare facilities. <br><br>METHODS: A scoping review was conducted utilising seven electronic databases. Two reviewers screened articles using eligibly criteria related to setting (postdischarge), caregiving (informal), age of TBI survivors (>  18 years) and injury severity (moderate-severe). Studies published in English between 1999 -2018 were included. <br><br>RESULTS: Fourteen articles met the inclusion criteria. Articles reporting on the same sample were merged during data charting. The final analyses included 11 articles comprised of qualitative, quantitative and mixed-methods studies. Ten themes were identified: psychological distress, social functioning, financial burden, family experiences, coping strategies, access to services, time burdens and physical, cognitive and behavioural difficulties. Characteristics of caregivers and TBI survivors were also reported. <br><br>CONCLUSION: Caregivers of moderate to severe TBI survivors experience challenges in various life domains, and there is limited research concerning caregivers in low- and middle-income countries. Future research should focus on understanding more nuanced experiences across various environments, which may increase comprehensive, flexible and long-term support.<p /> <p>Language: en</p>",
language="en",
issn="1053-8135",
doi="10.3233/NRE-210099",
url="http://dx.doi.org/10.3233/NRE-210099"
}