@article{ref1,
title="Public perspectives on acquired brain injury rehabilitation and components of care:  a Citizens' Jury",
journal="Health expectations: an international journal of public participation in health care and health policy",
year="2020",
author="Lannin, Natasha A. and Coulter, Megan and Laver, Kate and Hyett, Nerida and Ratcliffe, Julie and Holland, Anne E. and Callaway, Libby and English, Coralie and Bragge, Peter and Hill, Sophie and Unsworth, Carolyn A.",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="BACKGROUND: Brain injury rehabilitation is an expensive and long-term endeavour. Very little published information or debate has underpinned policy for service  delivery in Australia. Within the context of finite health budgets and the  challenges associated with providing optimal care to persons with brain injuries,  members of the public were asked 'What considerations are important to include in a  model of care of brain injury rehabilitation?' METHODS: Qualitative study using the  Citizen Jury method of participatory research. Twelve adult jurors from the  community and seven witnesses participated including a health services funding model  expert, peak body representative with lived experience of brain injury, carer of a  person with a brain injury, and brain injury rehabilitation specialists. Witnesses  were cross-examined by jurors over two days. <br><br>RESULTS: Key themes related to the need  for a model of rehabilitation to: be consumer-focused and supporting the retention  of hope; be long-term; provide equitable access to services irrespective of funding  source; be inclusive of family; provide advocacy; raise public awareness; and be  delivered by experts in a suitable environment. A set of eight recommendations were  made. <br><br>CONCLUSION: Instigating the recommendations made requires careful  consideration of the need for new models of care with flexible services; family  involvement; recruitment and retention of highly skilled staff; and providing  consumer-focused services that prepare individuals and their carers for the long  term. PATIENT AND PUBLIC CONTRIBUTION: As jury members, the public deliberated  information provided by expert witnesses (including a person with a head injury) and  wrote the key recommendations.<p /> <p>Language: en</p>",
language="en",
issn="1369-6513",
doi="10.1111/hex.13176",
url="http://dx.doi.org/10.1111/hex.13176"
}