@article{ref1,
title="Loss and recovery after concussion: adolescent patients give voice to their concussion experience",
journal="Health expectations: an international journal of public participation in health care and health policy",
year="2020",
author="Choudhury, Romita and Kolstad, Ash and Prajapati, Vishvesh and Samuel, Gina and Yeates, Keith",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="BACKGROUND: Most concussion studies have focused on the perspectives and expertise of health-care providers and caregivers. Very little qualitative research has been done, engaging the adolescents who have suffered concussion and continue to experience the consequences in their everyday life.   OBJECTIVE: To understand the experiences of recovery from the perspective of adolescent patients of concussion and to present the findings through their voices.   METHODS: Two semi-structured focus groups and two narrative interviews were conducted with a small group of 7 adolescents. Grounded theory was used to analyse the data.   RESULTS: Participants experience continuing difficulty 1-5 years after treatment with cognitive, emotional, social and mental well-being. The overriding experience among older adolescents (17-20) is a sense of irreversibility of the impact of concussion in all these areas.   CONCLUSION: There is a significant gap between the medical determination of recovery and what patients understand as recovery. Adolescents do not feel 'recovered' more than a year after they are clinically assessed as 'good to go'. Systematic follow-up and support from a multi-disciplinary health-care team would strengthen youths' coping and resilience.<p /> <p>Language: en</p>",
language="en",
issn="1369-6513",
doi="10.1111/hex.13138",
url="http://dx.doi.org/10.1111/hex.13138"
}