@article{ref1,
title="National Spinal Cord Injury Registry of Iran (NSCIR-IR) - a critical appraisal of its strengths and weaknesses",
journal="Chinese journal of traumatology",
year="2019",
author="Sharif-Alhoseini, Mahdi and Azadmanjir, Zahra and Sadeghi-Naini, Mohsen and Ghodsi, Zahra and Naghdi, Khatereh and Mohammadzadeh, Mahdi and Azarhomayoun, Amir and Zendehdel, Kazem and Khormali, Moein and Sadeghian, Farideh and Jazayeri, Seyed Behzad and Sehat, Mojtaba and Pirnejad, Habibollah and Benzel, Edward C. and O'Reilly, Gerard and Fehlings, Michael G. and Vaccaro, Alexander R. and Rahimi-Movaghar, Vafa",
volume="ePub",
number="ePub",
pages="ePub-ePub",
abstract="The National Spinal Cord Injury Registry of Iran (NSCIR-IR) is a not-for-profit, hospital-based, and prospective observational registry that appraises the quality of care, long-term outcomes and the personal and psychological burden of traumatic SCI in Iran. Benchmarking validity in every registry includes, rigorous attention to data quality. Data quality assurance is essential for any registry to make sure that correct patients are being enrolled and that the data being collected is valid. We reviewed strengths and weaknesses of the NSCIR-IR while considering the methodological guidelines and recommendations for efficient and rational governance of patient registries. In summary, the steering committee, funded and maintained by the MOHME, the international collaborations, continued staff training, suitable data quality, and the ethical approval are considered to be the strengths of the Registry, while limited human and financial resources, poor interoperability with other health systems, and time-consuming processes are among its main weaknesses.<br><br>Copyright © 2019 Chinese Medical Association. Production and hosting by Elsevier B.V. All rights reserved.<p /> <p>Language: en</p>",
language="en",
issn="1008-1275",
doi="10.1016/j.cjtee.2019.05.003",
url="http://dx.doi.org/10.1016/j.cjtee.2019.05.003"
}