@article{ref1,
title="Caregiver expectations of recovery among persons with spinal cord injury at three and six months post-injury: A brief report",
journal="Journal of spinal cord medicine",
year="2018",
author="Agtarap, Stephanie and Carl, Emily and Reynolds, Megan C. and Roden-Foreman, Kenleigh and Bennett, Monica and Rainey, Evan and Powers, Mark B. and Driver, Simon and Warren, Ann Marie",
volume="ePub",
number="ePub",
pages="1-4",
abstract="OBJECTIVE: Caregivers of patients with spinal cord injury (SCI) have increased risk of depression, anxiety, and diminished quality of life. Unmet expectations for recovery may contribute to poorer outcomes. <br><br>DESIGN: Prospective, longitudinal observation study. SETTINGS: Trauma/Critical care ICU at baseline, telephone for follow-ups. PARTICIPANTS: Caregivers of patients with SCI (n = 13). INTERVENTIONS: None. OUTCOME MEASURES: Expectations for recovery were assessed across four primary domains identified in a review of the literature including: pain severity, level of engagement in social/recreational activities, sleep quality, and ability to return to work/school. Caregivers' forecasts of future recovery were compared to later perceived actual recovery. <br><br>RESULTS: At three months, 75% of caregivers had unmet expectations for social engagement recovery, 50% had unmet expectations for pain decrease, and 42% had unmet expectations for sleep improvement and resuming work. Rates of unmet expectations were similar at six months, with 70% of caregivers reporting unmet expectations for social engagement recovery, 50% with unmet expectations for pain decrease, and 40% with unmet expectations for sleep improvement. <br><br>CONCLUSION: Unmet caregiver expectations for recovery could pose a risk for caregiver recovery and adjustment. Our results show that caregiver expectations merit further investigation for their link with caregiver mental health.<p /> <p>Language: en</p>",
language="en",
issn="1079-0268",
doi="10.1080/10790268.2018.1508953",
url="http://dx.doi.org/10.1080/10790268.2018.1508953"
}