@article{ref1,
title="Harmful or helpful? A systematic review of how those bereaved through suicide experience research participation",
journal="Crisis",
year="2018",
author="Andriessen, Karl and Krysinska, Karolina and Draper, Brian and Dudley, Michael and Mitchell, Philip B.",
volume="39",
number="5",
pages="364-376",
abstract="BACKGROUND: Many of the bereaved through suicide are interested in participating in postvention studies. However, there is a contradiction between the positive experiences of research participation and concerns raised by ethical boards. AIMS: To review studies on the experience of research participation by those bereaved through suicide, including initial contact with the study and its short- and long-term impacts. <br><br>METHOD: Systematic searches in Embase, Medline, PsycINFO, as well as Google Scholar identified 12 papers reporting on 11 studies. <br><br>RESULTS: The majority (73-100%) of study participants evaluated participation positively, and would recommend it to others (90-100%), as it was related to altruism, social support, and personal growth. A minority experienced participation as negative (2-10%) or upsetting (5-22%) due to feelings of guilt or painful memories. However, having a painful experience does not preclude seeing it as helpful. LIMITATIONS: Most studies concerned face-to-face psychological autopsy studies, and only two studies included a control group. <br><br>CONCLUSION: Research applying standardized measures may enhance our understanding of the factors germane to (non-)participation and to the likelihood of a positive/negative research experience. Vigilant recruitment and providing optimum care for participants are indicated. Further research may continue to improve participant safety and the research design of suicide bereavement studies.<p /> <p>Language: en</p>",
language="en",
issn="0227-5910",
doi="10.1027/0227-5910/a000515",
url="http://dx.doi.org/10.1027/0227-5910/a000515"
}