@article{ref1,
title="Quality of life in persons after traumatic brain injury as self-perceived and as perceived by the caregivers",
journal="Neurological sciences",
year="2016",
author="Formisano, Rita and Longo, Eloise and Azicnuda, Eva and Silvestro, Daniela and D'Ippolito, Mariagrazia and Truelle, Jean-Luc and von Steinbuechel, Nicole and von Wild, Klaus Rüdiger Helmut and Wilson, Lindsay and Rigon, Jessica and Barba, Carmen and Forcina, Antonio and Giustini, Marco",
volume="38",
number="2",
pages="279-286",
abstract="The primary aim of the study was to adopt QOLIBRI (quality of life after brain injury) questionnaire in a proxy version (Q-Pro), i.e., to use caregivers for comparison and to evaluate whether TBI patients' judgment corresponds to that of their caregivers since the possible self-awareness deficit of the persons with TBI. A preliminary sample of 19 outpatients with TBI and their proxies was first evaluated with the Patient Competency Rating Scale to assess patients' self-awareness; then they were evaluated with the QOLIBRI Patient version (Q-Pt) and a patient-centered version of the Q-Pro. Subsequently, 55 patients and their caregivers were evaluated using the patient-centered and the caregiver-centered Q-Pro versions. Q-Pt for assessing Quality of Life (QoL) after TBI, as patients' subjective perspective and Q-Pro to assess the QoL of patients as perceived by the caregivers. The majority of patients (62.2%) showed better self-perception of QoL than their proxies; however, patients with low self-awareness were less satisfied than patients with adequate self-awareness. Low self-awareness does not impair the ability of patients with TBI to report on satisfaction with QoL as self-perceived.<p /> <p>Language: en</p>",
language="en",
issn="1590-1874",
doi="10.1007/s10072-016-2755-y",
url="http://dx.doi.org/10.1007/s10072-016-2755-y"
}